Tuesday, October 27, 2015

Jackson's follow up

We went and saw Jackson's pediatrician as soon as he finished the antibiotics and they got another urine sample and tested to make sure that the infection was gone. His dr said that it had been a rare and pretty bad infection. He said that now we needed to find out what caused it. He had us schedule an ultrasound and another test that involved contrast and xrays. We had the ultrasound done a week later and the xray test done a week after that. The ultrasound looked at his kidneys and the following morning his pedi called me and told me that his right kidney is enlarged and he has a cyst with debris in it on/in his right kidney. I pretty much spent the rest of the day crying...I just knew something was wrong but kept hoping it was a fluke, but bladder infections in boys his age are very rare and usually are caused by an underlying issue. He said it could possible be reflex (which I guess is the best cause scenario) but didn't really know anything about the what would cause the cyst.  He told me I needed to make an appointment with a pediatric urologist with Los Angeles children's hospital and gave the name and number of who I needed to call.  He said to still do the xray test and I would need to take copies of those 2 tests to the specialist. The following week we had the xray and contrast test done and it wasn't as bad as I had expected it to be. The use a catheter to put the contrast liquid into his bladder and fill it and take xray images. The nurse that did it was amazing and was so good with him! And he did such a great job. His pedi called me the next day with the results and he said that it did show that he had reflex. They rate it on a scale of 5 being the most severe and his is a 1 on one side and a 3 on the other side. His pedi prescribed him preventative antibiotics until we see the specialist since reflex can cause another infection. We go to see the specialist this Wednesday. I'm anxious to see what the specialist says and what the next steps are.  He's doing great otherwise, being his normal crazy, silly, wild self. He takes the antibiotics once a day and does great with it. Doesn't seem to be in any pain or anything so that's good.